Clinical Data FAQs: How to Prepare for Disclosure

By: Amanda L. Rose , Robert A. Freedman , Ryan Mitteness , Chelsea Anderson

This article is part of our series on clinical data considerations. Read How to Approach Fundraising and Investor Relations.

When it comes to disclosing clinical trial data in the biotechnology arena, in particular for public biotech companies, timing is everything. Disclosures are not just about when to reveal the information, but also what is communicated, how the information is distributed, and to whom the data will be presented. It’s a balancing act that must strike an equilibrium between timing, clarity, regulatory compliance, and audience engagement.

The FAQs below should help prepare you to lead your company through its next data event:

When should I start preparing for disclosure?

Preparations can often begin several months in advance. Once a calendar is set for planned readout dates, establish a strong communication channel with the clinical team working on the trial readout, your investor relations team and your legal team. Make sure that you understand the basics—the trial structure, when the data are planned to arrive, and what data are anticipated. This will help you evaluate regulatory risks and necessary disclosures while setting expectations for the internal and external flow of information. Having a communications plan in place early can also be helpful if it becomes necessary to disclose data early (e.g., if there is a safety signal necessitating early unblinding or trial termination).

What can I prepare in advance?

It can help to develop a detailed day-by-day task plan. This plan should include proposed tasks from the moment the data arrives at the company for processing and reviewing, right up to the date of disclosure, and even beyond. This approach also helps solidify your position as a crucial participant in decisions about data timing and provides structure for the internal dissemination of data during the pre-public release phase.

Collaborate with the cross-functional team responsible for managing the data release to create core forms of press releases, corporate presentation slides and other supplementary items, such as a preliminary Q&A.

Establishing a structured timeline can be instrumental in ensuring everyone is aligned on key disclosure dates, the availability of key stakeholders, and assessing potential training needs in advance of receiving data.

How can we compare our data set to competitors?

That depends if the data comes from a head-to-head clinical trial. While it may be tempting to compare clinical data to your competitors, both the Food and Drug Administration (FDA) and Securities and Exchange Commission (SEC) generally oppose such comparisons if the data was not from a head-to-head trial. This is especially relevant for commercial-stage companies or those nearing a new drug application (NDA) or biologics license application (BLA) submission, when scrutiny from the FDA is particularly high. SEC scrutiny will also be amplified in connection with an initial public offering. Given the potential risks, it's generally best to leave data comparisons to investors and analysts.

What considerations apply to a blackout process?

A blackout period involves a temporary trading prohibition for all involved employees, executives, and insiders due to their access to material non-public information. Your blackout periods will generally follow the terms of your insider trading policy, but there are additional considerations when managing data and whether a non-routine blackout period should be put in place.

  • Make a timely plan for disseminating data, both internally and externally, and stick to it, limiting knowledge to those on a need-to-know basis. Also, ensure everyone involved understands and complies with your insider trading policy and insider trading laws. This approach can help streamline responses for any future investigations by the SEC or the Financial Industry Regulatory Authority (FINRA).
  • Remember, keeping select executives in the dark about your data is not a good option. The SEC assumes executives have knowledge of material non-public information that is known by company employees, regardless of their actual awareness. The "ostrich defense" (pretending ignorance) doesn’t work under the securities laws.
  • Keep in mind that the insider trading policy, including potential blackout periods, often extends to consultants and scientific advisors as well. These individuals should be trained on the requirements of the insider trading policy, in particular if they may receive access to data in advance of release (e.g., to give their views on how best to communicate the results).

Also important to note, special blackout considerations may apply in open-label trials when certain individuals with access to accumulating data may be able to draw material conclusions from that data. Those individuals, and possibly the executive team, may need to be blacked out far ahead of a database lock.

What if data are expected around the time of a Form 10-K or Form 10-Q filing or a planned investor meeting?

If the company has undisclosed topline clinical data when filing an Annual Report on Form 10-K or a Quarterly Report on Form 10-Q, it generally must disclose those data in the filing.

To avoid issues, you can either advance the Form 10-Q filing to a date before the company receives the data or delay the data receipt until after the scheduled filing.

Once the CEO or any other key executives who regularly engage with investors are aware of the data, they should stop all discussions with investors prior to disclosure.

Does the four business day reporting deadline for Form 8-K apply to topline clinical data releases?

No. A span of six to seven days from the point of receiving the data to public release is typical, however, more rapid disclosure may be necessary with negative results. Additionally, there may be other important timing considerations if the data are expected to support a financing for the company. A proactive legal strategy includes early discussion of the preferred release time with your investor relations team.

Are there special measures to preserve the ability to present data at future medical conferences?

Yes, given that many medical journals or conferences do not allow public data release prior to the presentation or publication. Legal teams must also ensure compliance with Regulation FD, which prohibits certain selective disclosure of material non-public information. A strategically timed, Regulation FD compliant press release or Form 8-K might be required. Determining the timing of a disclosure press release may require coordination with the applicable medical conference/journal to understand the exact timing (down to the hour) as to when the data will become publicly available and when any embargo may lift. It is possible that Regulation FD may require disclosure during market hours, in which case communication with the stock exchange may also be necessary.

Should presentations made at conferences be filed with the SEC?

That depends. The need for filing presentations varies based on the materiality and novelty of the data being released. If the data are significant and aren’t included in any current press release, then you may be required to furnish it under Item 7.01 of Form 8-K. In certain circumstances, particularly if your company has an active at-the-market offering program, you may want to file a summary of the material data under Item 8.01 of Form 8-K rather than the entire presentation. There are numerous considerations, including the detail of the presentations, the inclusion of quotes from executives and third parties that may impact the most appropriate way to publish the materials with the SEC.